2/18/2023 0 Comments In sound mind pill locations![]() But it kind of sounds like you are experiencing anxiety. Have you talked to your doctor about it? Your doc may be able to help ease your mind. I don't think it's normal to get so worried about being clean. But keep in mind that these are only experienced in a tiny percentage of patients. There are very specific infections that you have to watch out for, like TB or fungal infections (which I don't think being a clean freak would help prevent). I do avoid being around sick people and get a flu shot. It is a very specific part that is suppressed and for those of us who need it, we are brought down to "normal levels" by the drugs. Your immune system really isn't weakened that much by this class of drugs. The only problem I have ever had is I got a staph infection from a relative when I was on steroids (just a little patch on my chin that went away with Bactrim). I still refuse to use antibacterial soap. I believe very strongly in the hygiene hypothesis and think it's important for us to be exposed to relatively benign "bugs" to keep us healthy. I have definitely not become a clean freak. ![]() And I am usually a lightweight and meds really affect me profoundly. I have not had any side effects on Humira. I hope and pray that my health will improve more and more each day. I have another surgery that will be happening when they reverse my iliostomy. Its not easy having this bag connected to my stomach, all these scars. I am staying strong and staying positive and fighting through this. Life was going good and then I took a big fall. ![]() then suddenly the Crohns and AS take over. I have my own place now with my loving girlfriend and a great full time job. He doesn't like me on Enbrel due to the side effects, and I think he believes that the Enbrel may have caused my Crohn's. I see my GI tomorrow and am hoping he has some answers for me as well. I know I have a lot more questions, this is all I can think of right now. Humira or Enbrel in a Pill form? When I was in the hospital I mentioned to one of the doctors that I take Enbrel by injection, and he looked at me and said "isn't that available though now in a pill?" I looked online but didn't see much info about this, has anyone heard of Enbrel or Humira types of drugs in pill forms? Is this normal? Anyone else become this way since you've been on immunosuppresants?Ĥ. If I see a crumb on my table or a smudge on the floor I think "theres bacteria all over that which can harm me" so I am trying to keep everything as clean as possible. ![]() Everything has to be as clean as possible. Is there anything you are trying that has been working better for you than you thought to treat your condition?ģ.Being on these immunosuppressants, has anyone else became a clean freak? Now that I am on these drugs that lower your immune system, I am constantly cleaning and scrubbing and getting paranoid just about being outside and around people and car pollution. My dad has MS and I would hate to get that disease as well. Are there any new meds out there that you can recommed that are working really well for you? Im scared taking my enbrel, and scared about humira and remicade just because I don't want them to make me worse. I often wonder if this drug caused me to get Crohn's.Ģ.If you look at my signature you can see a list of meds that I am on. I also want off Enbrel because I am scared of the side effects, and have read online about a lot of people taking this drug getting more sick. For people taking Humira, what are the worse side effects you have experienced? I'm taking Enbrel and want to switch to Humira because I hear it treats BOTH Ankylosing Spondylitis and Crohn's, where as Enbrel I am told only treats the AS. If anyone out there can answer any of these questions, it doesn't have to be all, it would greatly help me out! Sorry if some of them don't make a lot of sense, I am tired right now but really wanted to post this.ġ. I have several questions but will try and make it short. You can view my other posts in the "Your Story" section about the recent pain I have been going through.Īnyways, I just got done taking my shot of Enbrel which I use for my Ankylosing Spondylitis, which is not fun taking, but it helps. 4 hospital stays, was hospitalized for about an entire month recently on feeding tubes through IV, test after test, had surgery etc. I was recently diagnosed with Crohn's this year, and since then it has been a nightmare.
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